Above and beyond for children with cancer
This policy explains how Pasic manages your personal data, why we collect data and your rights about any of your personal data that we hold.
Pasic is committed to being transparent and responsible about how we handle any personal data we collect from you.
All personal data we collect is managed according to the UK General Data Protection Regulation (UKGDPR) and the Data Protection Act 2018.
If you have any questions, please contact us at Pasic, Suite 100, 1 Hanley Street, Nottingham, NG1 5BL, email hello@pasic.org.uk or call 07734 741339.
Our lawful basis for processing personal data
We use the following lawful bases for collecting personal data:
Based on specific consent
For some activities, for example sending marketing communications, we require specific consent to perform them. We also ask for specific consent when asking for childhood cancer stories or case studies.
When necessary for the performance of a contract
If you enter into a contract for example, by working for Pasic, we will process the personal data required to enter into and fulfil that contract.
When we have a legal obligation
As a charity we have numerous regulatory and legal obligations which we must fulfil. This may mean processing personal data and sharing it with regulatory bodies, for example the Charity Commission or the Fundraising Regulator, or complying with requests from the police.
When necessary to protect vital interests
It may be necessary to collect and share certain personal information in order to protect the lives and health of our staff, volunteers or people fundraising for us, for example, to enable us to respond to a health or safeguarding emergency at an event, or to ascertain suitability for a fundraiser to undertake an activity which may pose a risk to their health.
When it is in our legitimate interests
There may be times when we determine that we have a legitimate interest to process certain personal information. We will only do so when we’ve determined that it does not override your rights or freedoms.
How we collect your personal information
When you give it to us directly
We may collect your information when you provide it to us directly. This could include, but is not limited to:
When a third party provides it to us
Your data may be shared with us by a third-party provider, e.g. when you sign up to support Pasic through a third party events company like TCS London Marathon, or when you use a third-party fundraising platform like JustGiving. You should always check the privacy policies of third-party services to understand what they will do with your data.
Your personal data may be shared with us by a family member or a friend who contacts us on your behalf or by a fundraiser who passes on your details to us.
We may occasionally use a third-party organisation like a professional fundraising company or a data processing company to collect and process your information. Where they are doing it purely on behalf of Pasic, we will be responsible for your information at all times.
From cookies and analytics software
Cookies are small text files placed on your computer when you visit websites. Cookies may help to track your behaviour, for example Google Analytics cookies. They may also be necessary for some website features to function properly, for example checkout processes.
You can configure your browser to block websites from accepting cookies and to delete any existing cookies that have already been downloaded. However, please note that blocking cookies may stop some features of our website from working correctly.
Please note: Cookies cannot be used to run code or programs, or to deliver viruses to your computer.
Find out more about cookies and how they work: https://ico.org.uk/for-the-public/online/cookies/
From social media
We may collect data that you have made publicly available on social media, for example if you tag us in a post or send us a direct message. Depending on your social media settings, you might give us permission to access information from those accounts or services.
From public or other external sources
We may combine information that we already have about you with information available publicly or through external sources. for example, socio-demographic information or information about previous donations you have made, in order to gain a better understanding of you and to improve our fundraising methods, products and services.
We may also obtain information about you where it is publicly available and found in places such as Companies House, Land Registry website or on social media and information that is published in articles and newspapers.
As a charity, we may take reasonable and appropriate steps to find out more information about our supporters, particularly where significant sums are being donated. We may conduct research, including accessing information which is already publicly available, on prospective donors, partners or volunteers to ensure that donations are from appropriate sources and do not pose an ethical or organisational risk to Pasic or to the children and families we support.
What personal information we collect
Personal data is defined as data that can be used to identify a living person. We will only ask for personal data when we require it to fulfil a service on your behalf (e.g. to register you for an event or process a donation). Personal data that we collect may include:
Under data protection law there are also special categories of personal data, which includes racial or ethnic origin, political opinions, religious or philosophical beliefs, trade union membership, genetic data, biometric data (where used for identification purposes), physical and mental health, or a person’s sex life or sexual orientation.
We will only ever collect special categories of personal data when we need to for very specific purposes, and with your consent. For example:
How we use your personal information
Pasic is a charity with whom families of children with cancer register for support. We also hold essential information only about our supporters on our database. We perform a range of tasks and process personal data for difference purposes. This could include:
Pasic will keep in touch with you by email or post for marketing purposes where you have agreed for us to do so. If you give consent (or ‘opt in’) for us to send you marketing updates by email, you will have the opportunity to unsubscribe if you change your mind by following the link at the bottom of those emails, or by emailing hello@pasic.org.uk to let us know.
When you sign up to take part in an event with us, we will usually send confirmation emails and follow-up emails specifically about that event. You will continue to receive these even if you opt out of marketing emails.
If an event is run through a third-party organiser, you may also receive emails from them; you may need to opt-out of their marketing emails separately.
Who we share your information with
We will never sell or rent your information
We may share your information with third party organisations who are authorised to operate on our behalf. This could include:
Additional information for Pasic families
We will request information which we require to offer you full access to our family support services. We use the information you provide to send you relevant communications and provide you with appropriate support. Your information is stored on a secure database.
Your rights
Under the UK GDPR, you have rights in relation to the collection and processing of your personal data:
Accessing and updating your personal information
You can request access to any information we hold about you by contacting our Data Protection Officer at Pasic. Equally, please let us know of any changes to your personal information.
You can also let us know if you would no longer like to receive communications from us or if you would prefer us not to profile you for the purposes of targeting or tailoring our fundraising efforts, by emailing hello@pasic.org.uk, calling 07734 741339 or writing to our Data Protection Officer at the address above.
Changes to this policy
We may change our privacy policy from time to time so please check back periodically.
This privacy policy was last updated February 2026.